Do you have arthritis pain? If so, is it in your hands or your knees? Is it in your hip or your back? What do you do on those days when the pain goes from bothersome to really bad? Is Tylenol or Motrin your drug of choice, or do you need something stronger?
If you’re like most people, annoying aches and pains become an accepted part of life as we get older. But what would you do if you were unable to get your own pain medicine, and didn’t have the words to tell anyone that it hurt? Unfortunately this is often the case for people living with advanced Alzheimer’s disease or other dementias. Those lifelong aches and pains don’t go away when dementia sets in. In fact, the nerves in our brains that sense pain are among the last to be effected by progressing dementia.
Pain can actually be mistaken as behavioral issues for people with advanced Alzheimer’s. Carol Waarala, LMSW from Odyssey Hospice shared the following story during a recent presentation:
Imagine that you’re a resident in a skilled nursing facility. During the night you rolled into the wall, banging your thin arm pretty hard. It’s very painful when you wake up in the morning, but nobody saw it happen and you can’t find the words to explain. So, when the caregiver comes into your room to help you get dressed, she tries to raise your arm, but it hurts, so you reflexively jerk it back. She tries again, not understanding that you are in pain, and once again you pull your arm back. As she continues to try to dress you, you push her away in an attempt to stop the pain. From the outside, it looks as though you’re becoming uncooperative, or are displaying some sort of behavioral issue.
It’s important that all of us, geriatric care managers, nurses, physicians, aids, and family members be on the look out for indicators that someone is in pain. Facial grimaces and repeated vocalizations are often signs. Hospice agencies have a wealth of knowledge about observable signs of pain, and can be a resource if you need more information.
Ever vigilant,
Lynn